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17 NAELA J. 13 (2021)
Why We Are Failing Family Caregivers

handle is hein.journals/naela17 and id is 19 raw text is: Volume 17                                                                               13
Why We Are Failing Family Caregivers
By Aviv S. Bliwas, JD
I.  Introduction  ...............................................................................................  14
II.  Overview of Existing Family Caregiver Support.......................................... 16
A. Federal Governm    ent Program  s..............................................................  16
1.  M ed icaid ........................................................................................... .  17
2. Fam  ily  and  M edical Leave Act ............................................................ 17
3. M edicare: H ospice  Benefit ................................................................  17
B. State and Local Government Programs ................................................. 17
C . N onprofit O rganizations......................................................................... 18
D . Private/For-Profit Businesses ..................................................................  18
III. Current Laws Addressing Family Caregiver Needs and Improvements
Needed in Family Caregiver Support ......................................................... 19
A .  C urrent  Law s .........................................................................................  19
1. National Family Caregiver Support Act ............................................. 19
2. RAISE   Fam  ily  Caregivers Act............................................................  21
3. Pennsylvania Caregiver Advise, Record, Enable Act and Revised
Federal Regulations for Discharge Planning....................................... 24
a. Pennsylvania Caregiver Advise, Record, Enable Act....................... 24
b. Revised Federal Regulations for Discharge Planning..................... 25
B. Needed Family Caregiver Support Improvements ................................. 26
1. Keeping Family Caregiver Resource Lists Up to Date ........................ 26
2. Consulting With the Patient and Family Caregiver on Patient's
N onm  edical N eeds  ............................................................................  27
3. Providing Information on Family Caregiver Resources to Caregivers
in  a  Tim ely  M anner ..........................................................................  27
IV .  A  W ay  Forw ard ...........................................................................................  28
A. Education and Training of Local Partners ............................................. 28
B. Creation of a National Clearinghouse of Information on Family
C aregiver  R esources ...............................................................................  29
C . W hat Else  C an  Be  D one?.......................................................................  30
1. Hospital Readmissions Reduction Program as a Blueprint .......... 30
2. Assistance  on  the  Front Line .............................................................. 31
V .  C onclusion  .................................................................................................  3 1
About the Author
Aviv S. Bliwas, JD, is an Elder Law solo practitioner with offices in Camp Hill, Pennsylvania. She earned
a JD from University of Pittsburgh School of Law in 2008 and is currently pursuing her LLM in elder law
at Stetson University.

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