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14 Harv. L. & Pol'y Rev. 393 (2019-2020)
Black Maternal Health Research Re-Envisioned: Best Practices for the Conduct of Research with, for, and by Black Mamas

handle is hein.journals/harlpolrv14 and id is 405 raw text is: Black Maternal Health Research Re-Envisioned: Best Practices for the Conduct of Research With, For, and By Black Mamas Black Women Scholars and the Research Working Group of the Black Mamas Matter Alliance* The purpose of this article is to provide an overview of a forthcoming report entitled Black Maternal Health Research Re-Envisioned: Recommendations for Improving Research on Maternity Care for Black Mamas' which provides principles that should underpin the ethical design of clinical, epidemiological, health services, and public health research, specifically, with, for, and by Black Mamas. This article supplements the research rubric developed by the Research Working Group of the Black Mamas Matter Alliance. The full report presents recommendations for improving research on maternal health out- comes for Black Mamas and integrates the BMAM Care Working Group's Black Paper: Setting the Standard for Holistic Care of and for Black Women. This article begins by defining the problem and the inherent assumptions necessary to determine the positionality of the research rubric and report. Fundamentally, we believe the conduct of research has historically been unethical and inhumane specif ic to Black Mamas. We then turn to histor- ical perspectives and the conceptual framework used to develop the research rubric. The framework includes Birth Justice, Reproductive Justice, Human Rights, Black Feminism, Womanism, and Research Justice. Next, we synthesize the intersections of the holistic care report and use those principles to outline how they apply to research. Finally, we present the re-envisioning of research from the perspective of reproductive justice and why this approach is optimal in the current landscape of health services provision, law, policy, and science. INTRODUCTION ................................................. 394 I. ASSUMPTIONS AND TRANSPARENCY ........................ .396 II. HISTORICAL PERSPECTIVES ................................ . 399 A. Lack of Informed Consent................................ 400 B. Lack of Acknowledgment or Compensation ................. 401 C. Explicit Coercion of Communities of Color ................. 401 D. Criminalization of Pregnant People ....................... 402 III. CONCEPTUAL FRAMEWORKS ............................... .404 IV. INTERSECTION OF HOLISTIC CARE AND RESEARCH ......... 405 V. BEST PRACTICES FOR THE CONDUCT OF RESEARCH WITH, FOR, AND BY BLACK MAMAS .............................. 407 A. Recognize and Respect the Rights of Black Mamas .......... 407 * BMMA Research Working Group: Angela D. Aina, Ifeyinwa V. Asiodu, Philicia Cas- tillo, Jill Denson, Courtney Drayton, Rose Aka-James, Inas K. Mahdi, Nia Mitchell, Isabel (Bella) Morgan, Ayanna Robinson, Karen Scott, and Caitlin R. Williams. Black Women Scholars: Abigail Aiyepola, Helen Arega, Brittany D. Chambers, Joia Crear- Perry, Ana Delgado, Kemi Doll, Nikia Grayson, Andrea V. Jackson, Zoa Julian, Cassondra Marshall, Monica R. McLemore, Biftu Mengesha, Sayida Peprah, Jessica Roach, Lynn Rob- erts, Hedwige (Didi) Saint Louis, Sanithia Williams, and Taida Wolfe. 1 The term Black Mamas is inclusive of all birthing persons (e.g., cis, trans, non-binary, queer and gender nonconforming individuals) of African descent (e.g., Afro-Latinx, African- American, Afro-Caribbean, Black, and African Immigrants living in the United States).

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