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3 Health L.J. 59 (1995)
Professional Perspectives: A Survey of Canadian Providers

handle is hein.journals/hthlj3 and id is 67 raw text is: Professional Perspectives: A Survey of Canadian Providers Dorothy C. Wrtz* Introduction Reasoned ethical discussion requires, as a baseline, some overall knowledge about people's views on specific issues. Only by knowing how others would respond to ethically problematic situations and why they would choose their responses can professionals begin to work toward a consensus for practice. To provide a basis for discussion, we conducted a survey of 134 Canadian genetics professionals.' This survey follows up on an earlier survey of 47 members of the Canadian College of Medical Geneticists (CCMG) which we conducted in 1985 as part of a 19-nation survey of 682 geneticists.2 When appropriate, we have also commented on the views of a pilot sample of 99 users of genetics Dorothy C. Wertz, Ph.D., Senior Scientist, Division of Social Science, Ethics and Law, The Schriver Center for Mental Retardation, Waltham, Massachusetts, USA. Support for this project was provided by contract from the National Institute of Child Health (National Institutes of Health, USA), and by grant from the Ethical, Legal and Social Implications Branch, National Center for Human Genome Research. We would like to thank Ives and Claire Goldsmith for distributing the professional surveys. The 1994 survey of Canadian providers was supported by the Mental Retardation and Developmental Disabilities Branch, National Institute of Child Health and Human Development (NICHD), NIH, USA, and by the Ethical, Legal, and Social Implications (ELSI) Branch, National Centre for Human Genome Research, NIH, USA. The author is also surveying geneticists and genetic counselors in the USA and patients in the USA and Canada, under a contract from NICHD, and geneticists in 35 other nations, under a grant from ELSI. As of May, 1995, a total of 2787 geneticists have responded, 61% of those asked to participate. D.J. Roy & J.G. Hall, Ethics and Human Genetics in Canada in D.C. Wertz & J.C. Fletcher eds., Ethics and Human Genetics: A Cross-cultural Perspective (Heidelberg: Springer-Verlag, 1989) 119. For a description of the entire 19-nation study, see D.C. Wertz, J.C. Fletcher, & J.J. Mulvihill, Medical Geneticists Confront Ethical Dilemmas: Cross-cultural Comparisons Among 18 Nations (1990) 46 Am. J. Hum. Genet. 1200 and D.C. Wertz, The 19-Nation Survey: Genetics and Ethics Around the World in D.C. Wertz & J.C. Fletcher eds., Ethics and Human Genetics: A Cross- cultural Perspective (Heidelberg: Springer-Verlag, 1989) 1.

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