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67 Case W. Res. L. Rev. 1171 (2016-2017)
Exploitation in Medical Research: The Enduring Legacy of the Tuskegee Syphilis Study

handle is hein.journals/cwrlrv67 and id is 1225 raw text is: CASE WESTERN RESERVE LAW REVIEW - VOLUME 67 - ISSUE 4 - 2017 EXPLOITATION IN MEDICAL RESEARCH: THE ENDURING LEGACY OF THE TUSKEGEE SYPHILIS STUDY Ruqaiijah Yearbyt CONTENTS INTRODUCTION ............................................................1172 I. MEDICAL RESEARCH STUDIES INVOLVING CHILDREN: THE STRUCTURE AND HISTORY........................................ 1177 A. Structure of Medical Research Studies Involving Human Subjects .... 1178 B. The Belmont Report.................................... 1181 C. The Common Rule.....................................1187 II. INCLUSION, EXPLOITATION, AND BIAS .................. ............. 1190 A. Inclusion ............................................. 1191 B. Using Inclusion to Exploit............................. 1192 C. Bias in Health Care....................................1198 1. Structural Racial Bias .............................. ...... 1198 2. Institutional Racial Bias ..................... ......... 1205 D. The Effect of Bias on Medical Research.....................1208 III. ENSURING JUSTICE IS FULFILLED .................................... 1211 A. Ending Exploitation: Human Development Approach...... ...... 1212 1. Theory ................................................. 1212 2. Human Development in the U.S................ ............ 1215 3. Applying the Approach to U.S. Research ....... ............. 1216 B. Measuring Justice: Vulnerability and Equity Impact Assessment Tool ................................... ...... 1218 1. The VEIA ................................. ....... ........... 1221 2. Applying the VEIA ............................ .......... 1223 t Associate Dean of Institutional Diversity and Inclusiveness and the David L. Brennan Professor of Law, Case Western Reserve University School of Law. B.A. (Honors Biology), University of Michigan, 1996; J.D., Georgetown University Law Center, 2000; M.P.H., Johns Hopkins School of Public Health, 2000. I would like to thank Ifeoma Ajunwa, Deleso Alford, Devonya Havis, Cynthia Ho, Isabel Marcus, Teresa Miller, Stephanie Phillips, and Rebecca Redwood for their insightful comments. I would also like to thank my former research assistants, Samantha Malusky, Nadia Chaudhry, Maureen Polen, and Di Zhang. Finally, I would like to thank Chad Aronson and the other student editors of the Case Western Reserve Law Review for their diligent work in hosting the symposium honoring Fred Gray and pub- lishing this volume. A draft of this article was presented at the 2015 Lutie A. Lytle Black Female Faculty Writing Workshop and the 37th Annual ASMLE Health Law Professors Conference. 1171

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