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March 21, 2017


Waiting Lists in Medicaid Section 1915(c) Waivers


The Social Security Act (SSA) authorizes several waiver
and demonstration authorities that give states flexibility in
operating their Medicaid programs. Each waiver authority
has a distinct purpose and specific requirements. Medicaid
waivers provide states the opportunity to try new or
different approaches to the delivery of health care services
or to adapt programs to the special needs of particular
geographic areas or groups of Medicaid enrollees. For
example, waiver programs allow states to extend benefits
that are, among other things, neither comparable across
groups nor statewide.

The term Medicaid waiver is so-named because states
may request that the Secretary of the Department of Health
and Human Services (HHS) waive certain statutory
requirements that would normally apply to services covered
under Medicaid state plans. For each waiver, states must
submit a waiver application for review and approval by the
Centers for Medicare & Medicaid Services (CMS). Unlike
Medicaid state plan benefit coverage, Medicaid waiver
benefit coverage is time-limited for the duration of the
waiver (e.g., three or five years) and must be renewed by
the state subject to CMS approval.

Section 1915(c) Home and Community-Based Services
(HCBS) Waiver authority authorizes the Secretary of HHS
to waive certain requirements of Medicaid law, thereby
allowing states to cover a broad range of HCBS (including
services not available under the Medicaid state plan) for
certain persons with long-term care needs. Specifically,
under SSA Section 1915(c) states may waive rules
regarding statewideness and comparability of services.
States may also apply certain income-counting rules to
persons in HCBS waivers that allow an individual to be
eligible for Medicaid who might not otherwise qualify. For
FY2014, Medicaid expenditures for Section 1915(c) HCBS
waivers were $41.5 billion.

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Section 1915(c) waivers are designed to expand
opportunities for states to provide home and community-
based care to additional groups of persons with long-term
services and supports (LTSS) needs while containing
Medicaid costs. Under this authority, states with approved
applications may provide home and community-based care
to persons who, without these services, would require
Medicaid-covered institutional care. Section 1915(c)
waivers permit states to cover services beyond the medical
and medically related benefits that have been the principal
focus of the Medicaid program. Under this authority, states
can cover a wide variety of nonmedical, social, and
supportive services that allow individuals to live
independently in the community.


The Medicaid statute specifies a broad range of services
that states may provide to waiver participants. These
services include case management, homemaker/home
health aide, personal care, adult day health, habilitation,
rehabilitation, and respite care. States also have flexibility
to offer additional services, when approved by the HHS
Secretary. For individuals with chronic mental illness,
states may cover day treatment or other partial
hospitalization services, psychosocial rehabilitation
services, and clinic services (whether or not furnished in a
facility) under a waiver. Section 1915(c) waivers may not
cover room and board in a community-based setting, such
as an assisted living facility.


States must target a Section 1915(c) waiver to a specific
population, such as individuals under age 65 with physical
disabilities, individuals with intellectual or developmental
disabilities, individuals aged 65 and older, or individuals
with mental illness. As a result, states typically have more
than one approved Section 1915(c) waiver, with each
waiver program offering a specialized package of HCBS to
a specific population. A CMS final rule published in 2014
gives states the option to combine target groups within one
waiver program. Prior to this change, a Section 1915(c)
waiver could serve only one of the following three target
groups: (1) older adults, individuals with disabilities, or
both; (2) individuals with intellectual disabilities,
developmental disabilities, or both; or (3) individuals with
mental illness. Eligible waiver participants must meet
certain financial requirements (including income and
resource requirements) and state-defined level-of-care
criteria that demonstrate the need for LTSS. That is,
individuals must have a level of need for LTSS that would
otherwise be covered under a Medicaid institutional benefit,
such as nursing facility care, Intermediate Care Facility for
people with Intellectual Disability (ICF/ID), or hospital
care.


There are no statutory or regulatory requirements that
define or describe waiting lists for Medicaid Section
1915(c) waiver programs. Under the Sectionl915(c) waiver
authority, states may cap the number of individuals served
in a waiver program by setting a numerical limit (no less
than 200) on the number of individuals participating in the
waiver. Such limitations must be specified in the state's
application for a Section 1915(c) waiver, which is subject to
CMS approval. Because state Medicaid programs often
have greater demand for HCBS than the number of
available waiver slots for a given program, limiting the
number of individuals receiving HCBS is one way for states
to contain costs. As a result, many states maintain waiting
lists (sometimes referred to as interest lists, planning lists,


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