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Updated January 11, 2016


Federal Laws Concerning Advance Directives


An advance directive is a written statement by a competent
person indicating his or her wishes regarding medical
treatment in the event of future incompetence. In this
context, incompetence means that a person cannot express
his or her wishes which may be caused by mental infirmity,
unconsciousness, or the inability to communicate. Advance
directives may be used to address medical questions during
any period of incompetence, including those periods
associated with terminal illness.

In general, there are two types of advance directives: (1) a
living will and (2) a health care power of attorney (also
referred to as a durable power of attorney). A living will
can inform health care providers about the type of medical
care that an individual wants provided or withheld. This
may include any type of medical treatment, including a life-
sustaining procedure. Living wills typically take effect
when the patient cannot communicate his or her wishes for
medical care. In general, once a physician receives a living
will, he or she either must honor its instructions or transfer
the patient to another physician who will honor them. A
health care power of attorney is a document that identifies a
health care proxy or decisionmaker for the patient. This
document typically takes effect when a physician decides
that a patient is unable to make a health decision.

All 50 states and the District of Columbia have laws
concerning advance directives and the appointment of a
health care proxy. While generally a matter of state law,
Congress has passed laws with respect to advance directives
and advance care planning.


In 1990, Congress passed the Patient Self-Determination
Act (PSDA; P.L. 10 1-508), which requires certain Medicare
and Medicaid covered providers (hospitals, nursing homes,
home health agencies, hospices, and Medicare Advantage
plans) to follow specified policies and procedures in regard
to advance directives. Covered providers are required to
maintain written policies and procedures with respect to

* providing adults with written information regarding
   their rights under state law to make decisions
   concerning medical care, including formulating advance
   directives;
* documenting an advance directive in the individual's
   medical record;
* not conditioning the provision of care, or otherwise
   discriminating against an individual, based on whether
   or not there is an advance directive;
* ensuring compliance with requirements of state law
   respecting advance directives; and


* providing education for staff and the community on
   issues concerning advance directives.
The PSDA also mandated that certain covered providers
distribute information about advance directives according to
the timing of medical or health-related events such as at the
time of admission, initial receipt of care, or plan enrollment.
Medicare-certified providers that do not comply with these
requirements may have payments withheld by the Secretary
of Health and Human Services (HHS). Medicaid law does
not contain a similar compliance requirement. Furthermore,
the PSDA provides for the continued application of state
laws that allow health care providers to object, as a matter
of conscience, to implementation of an advance directive.

To monitor implementation, a 2015 Government
Accountability Office (GAO) report found that the Centers
for Medicare & Medicaid Services (CMS) provides
documentation to inform covered providers and describe
agency monitoring activities (GAO- 15-416). In doing so,
CMS relies on outside entities such as state survey agencies
and accrediting organizations, as well as internal contract
review to monitor the advance directive requirement. GAO
also found that while approaches to inform individuals
about advance directives can vary by provider, similar
challenges existed across settings, including provider
discomfort in talking about end-of-life issues as well as lack
of staff time for such discussions.


Two other laws concerning advance directives and advance
care planning are the National Defense Authorization Act
for Fiscal Year 1996 (§748 of P.L. 104-106; 10 U.S.C.
1044c), which established a federal advance directive for
military personnel that explicitly preempts state law, and
the Medicare Improvements for Patients and Providers Act
of 2008 (MIPPA; P.L. 110-275). Among other things,
MIPPA added end-of-life planning to the initial
preventive physical exam that Medicare beneficiaries
receive upon enrollment. MIPPA defines end-of-life
planning to mean verbal or written information regarding
an individual's ability to prepare an advance directive in the
case that an injury or illness causes the individual to be
unable to make health care decisions; and whether or not
the physician is willing to follow the individual's wishes as
expressed in an advance directive.


The characterization of end-of-life or advance care planning
as death panels during the health reform debate led
policymakers to shy away from proposals to establish a
Medicare covered advance care planning (ACP) benefit
under the Patient Protection and Affordable Care Act
(ACA; P.L. 111-148, as amended). However, some
stakeholders saw opportunity to include more limited
coverage of ACP under the ACA-established Medicare


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