About | HeinOnline Law Journal Library | HeinOnline Law Journal Library | HeinOnline
LOG IN
LOG IN

Report to Scope and Program Committee [i] (June 26, 2005)

handle is hein.nccusl/nccpub01203 and id is 1 raw text is: Report and Recommendation of Study Committee On Misuse of Genetic Information June 26 2005 Recommendation Your Study Committee recommends that creation of a Drafting Committee to draft a Uniform Act on Misuse of Genetic Information Act in the areas of insurance and employment. Background The current Study Committee is composed of D. Joe Willis, (Chair) Mike Getty, Peter Langrock, Genny Ohrenschall, Art Peterson, Ken Takayama, James Wynn, Joan Zeldon and James Nelson. Henry Drummond was appointed but resigned his position from the Commission and did not participate. Robyn Shapiro participated as ABA advisor. Several current members were also members of the Study Committee that started this project and the Committee benefited from that continuity. The Current Committee began its work with a more narrow focus. It focused on that areas of employment and insurance and potential misuse of genetic information in those areas in and effort to make the task more manageable. The Committee had the benefit of all prior work, exchange of ideas and suggestions, which did include some survey of existing law. The Committee also had the very able help of Professor Philip G. Peters (University of Missouri School of Law) and Professor Ellen Deason (Ohio State University School of Law). Professor Peters provided a survey of existing state law and a grid to better summarize various approaches. His work is attached as an Exhibit A. Most States have some law in this area but it is all over the board as to approach. Also included as Exhibit B is a summary from Professor Peters setting out Creative Strategies from Europe dealing with life insurance. Professor Deason, in addition to her law training helped the committee understand the technical aspects of the subject matter. Both Professors Deason and Peters deserve a well-deserved thank you. The Committee and the Chair also had the invaluable guidance and suggestions from both Fred Miller and Bill Henning and Martha Walters. This guidance was also invaluable in keeping the focus limited for now with the hope of completing the Study Committee work and any recommendation to be made in a timely and focused manner. The Committee did its work through independent efforts assisted by those mentioned above through telephone conferences. Due to various scheduling problems and time zone constraints not all members made each telephone conference but most did. The participation level and diversity of viewpoint was very good. During the Committee's work the Congress took up an effort but it stalled. The Australian Law Reform Commission published it Genes and Ingenuity Report (June 2004) dealing primarily with patent issues but was an outgrowth of an earlier study dealing with Protection of Human Genetic Information. The information obtained demonstrates that neither the States in the United States nor the United States have a comprehensive PDX/01 2345/012345/JW/1 326343.1

What Is HeinOnline?

HeinOnline is a subscription-based resource containing thousands of academic and legal journals from inception; complete coverage of government documents such as U.S. Statutes at Large, U.S. Code, Federal Register, Code of Federal Regulations, U.S. Reports, and much more. Documents are image-based, fully searchable PDFs with the authority of print combined with the accessibility of a user-friendly and powerful database. For more information, request a quote or trial for your organization below.



Contact us for annual subscription options:

Contact Us

Already a HeinOnline Subscriber?

Log In

profiles profiles most