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11 Med. L. Int'l 1 (2011)

handle is hein.journals/medclint11 and id is 1 raw text is: Medical Law International, 2011, Vol. 11, pp. 1-22 © 2011 A B Academic Publishers-Printed in Great Britain PARENTAL INVOLVEMENT IN END-OF- LIFE DECISIONS IN NEONATOLOGY: LEGAL CONSIDERATIONS WITH REGARD TO DUTCH MEDICAL PRACTICE JOZEF H.H.M DORSCHEIDT* University of Groningen, The Netherlands EDUARD VERHAGEN** University of Groningen, The Netherlands PIETER J.J. SAUER*** University of Groningen, The Netherlands JOEP H. HUBBEN**** University of Groningen, The Netherlands ABSTRACT Developments in legal and medical research regarding end-of-life decisions regarding severely suffering neonates in the Netherlands provide good cause for reflection on specific items of this issue. This article deals with the outcomes of the first national survey on end-of-life practice in Dutch Neonatal Intensive Care Units (NICUs) and examines the legal aspects of parental involvement in the decision making process. In this regard the authors reflect on the Dutch interpretation of 'hopeless and unbearable suffering', the medical-professional conduct in case of medical neonaticide, parental authority over an infant's fundamental right to life and the role of parents in supervising legal-procedural aspects. INTRODUCTION The issue of end-of-life decisions regarding severely suffering newborn infants has been-and still is-widely discussed. In this debate, medical, ethical and legal aspects are thoroughly addressed and the importance of a multidisciplinary approach of the issue is generally acknowledged. Still, many aspects of the issue remain undecided, while apparent consensuses regarding certain aspects are often overtaken by new casuistic nuances.

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