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4 J.L. & Biosciences 1 (2017)

handle is hein.journals/jlbsc4 and id is 1 raw text is: 




Journal of Law and the Biosciences, 1-2
doi:10.1093/jlb/lsx016


EDITORIAL



Dear  Reader,

We  are pleased to introduce Volume  IV, Issue 1 of Journal of Law and the Biosciences
(JLB). JLB is a peer-reviewed, open access interdisciplinary academic journal advanc-
ing scholarship and fostering dialogue on a broad set of topics involving law and the
biosciences from reproductive technologies, to big data, to innovation policy.
This issue includes six original pieces exploring some of these complex issues:

   -  In Reflecting the Human Nature of IVF Embryos, Jenni Millbank  examines
      the narratives ofa selection ofwomen patients about their sense ofconnected-
      ness to their stored or discarded embryos. In her paper, Millbank asks how
      we could reorient law and policy toward the concerns, needs and desires of
      such women?
   - Adrian  Thorogood,  Constance  Deschenes  St-Pierre and Bartha Maria Knop-
      pers' piece Substitute Consent to Data Sharing compares different regula-
      tory frameworks to determine when  substitute decision makers can consent
      to data sharing. Their piece examines and tries to clarify this murky legal and
      ethical area.
     In Barred from  Better Medicine?,  Jennifer Wagner,  Elaine Huang   and
     Jacqueline Cauley  find that without regulatory reforms to facilitate partici-
     patory research rights of prisoners and careful planning ofviable and responsi-
     ble recruitment, engagement, and retention strategies the Precision Medicine
     Initiative could exacerbate health disparities, and increase levels of distrust in
     science.
   - Jennifer Kulynych and Hank  Greely's piece Clinical Genomics, Big Data, and
      Electronic Medical Records explores the genomics privacy questions posed
      by widespread use of medical records for research, without consent, which
      attracts much less attention compared to biospecimen research. They set out
      a list of recommendations to better reconcile the rights of patients with the
      advance of genomic research.
   -  By focusing on payers, Rebecca Eisenberg and W. Nicholson  Price II, offer a
      new perspective on innovation policy in healthcare in their piece Promoting
      Healthcare Innovation on the Demand   Side. They identify policy tools that


©  The Author 2017. Published by Oxford University Press on behalf of Duke University School of Law,
Harvard Law School, Oxford University Press, and Stanford Law School. This is an Open Access arti-
cle distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs licence
(http://creativecomnons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distri-
bution of the work, in any medium, provided the original work is not altered or transformed in any way, and that
the work is properly cited. For commercial re-use, please contact journals.permissionsaoup.com

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