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18 Ind. Health L. Rev. 1 (2021)

handle is hein.journals/inhealr18 and id is 1 raw text is: Indiana Health Law Review Volume XVIII 2021 Number 1 ARTICLES AM I MY COUSIN'S KEEPER? A PROPOSAL TO PROTECT RELATIVES OF GENETIC DATABASE SUBJECTS ROBERT I. FIELD,* ANTHONY W. ORLANDO,** & ARNOLD J. ROSOFF*** I. INTRODUCTION We live in a brave new world full of exciting possibilities for medical and human advancement. Mapping of the genome has taken our ability to understand individual humans to a substantially more detailed and intimate level than has ever before been possible. At the same time, advances in computer science, artificial intelligence, and the universality of internet connectedness have ushered in the era of big data and enabled us to examine and understand as never before what all of us have in common and what makes each of us unique.' By aggregating data from and about large numbers of people and getting a broader view of the human collective, we can understand better and in greater detail what makes for the best health and health care of an individual human, especially when we can take it down to the intimate genetic level. These advances have spawned the era of precision medicine, in which we can diagnose and treat human conditions and ailments with much greater effectiveness. It is a time of great possibilities but also of great perils, particularly as regards the confidentiality of each individual's medical status and human * Robert I. Field, J.D., M.P.H., Ph.D., is Professor of Law at the Kline School of Law, Professor of Health Management and Policy at the Dornsife School of Public Health at Drexel University, and an Adjunct Senior Fellow of the University of Pennsylvania's Leonard Davis Institute of Health Economics. ** Anthony W. Orlando, M.Sc., M.P.W., Ph.D., is Assistant Professor of Finance, Real Estate, and Law at the College of Business Administration at California State Polytechnic University, Pomona. *** Arnold J. Rosoff, J.D., is Professor Emeritus of Legal Studies and Health Care Management at The Wharton School of the University of Pennsylvania and a Senior Fellow of Penn's Leonard Davis Institute of Health Economics. The authors would like to thank the attendees of the 2019 ASLME Health Law Professors Conference for their helpful comments. The authors also thank Aminata Jalloh for research assistance. 1. For an overview of big data in health care, see Wullianallur Raghupathi & Viju Raghupathi, Big Data Analytics in Healthcare: Promise and Potential, 2 HEALTH INFO. SCI. & SYS. art. 3 (2014).

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