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B-164031(2) 1 (1974-02-26)

handle is hein.gao/gaobabkyt0001 and id is 1 raw text is: . R , PFNF t L14T.7 WASHINGTON, D.C. ZD548 RELEASED B-164031(2) FEB26 194 The Honorable Robert N. Giaimo House of Representatives 2C b.2 Dear Mr. Giaimo: In response to your request of July 10, 1973, and a discussion with your office on July 24, 1973, we have re- viewed the Department of Health, Education, and We1fae's .. ooe sARAnmia ,Contrl Act (42 U.S.C. 300c) which was enacted on August 29, 1972. Cooley's anemia is an inherited blood disorder which occurs primarily in persons of Mediterranean ancestry. In the United States most of the victims are of Italian, Greek, Turkish, Southern French, or North African descent or origin, although the disease is not limited to these groups. As in many genetic blood disorders, those who inherit the gene from only one parent carry the trait and are usually free of symptoms and about 25 percent of the children whose parents both carry the trait have overt Cooley's anemia. Cooley's anemia is characterized by the production of abnormally thin red blood cells and by a pro- found anemia which appears soon after birth. The National Cooley's Anemia Control Act amends title XI of the Public Health Service Act and requires the Sec- retary, HEW, to (1) carry out a program to develop informa- tion and educational materials about Cooley's anemia and to disseminate such information and material to persons pro- viding health care and to the public generally and (2) establish a program within the Public Health Service to provide voluntary Cooley's anemia screening, counseling, and treatment. The act provides that the Secretary, HEW, may make grants and enter into contracts for projects (l) for estab- lishing and operating Cooley's anemia screening, treatment, and counseling programs and C2) for researching the diagnosis, treatment, and prevention of Cooley' {-anemia. v?

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