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16 McGill J.L. & Health 1 (2024)

handle is hein.journals/mcghealp16 and id is 1 raw text is: MCGILL JOURNAL OF LAW AND HEALTH ~ REVUE DE DROIT ET SANTE DE MCGILL CANADA'S GENETIC NON-DISCRIMINATION ACT: FALSE SECURITY FOR CUSTOMERS OF DIRECT-TO-CONSUMER GENETIC TESTING SERVICES Victoria Di Felice* In the late twentieth century, Direct-to- Consumer Genetic Testing (DTC-GT) companies appeared in the market, selling at home genetic tests. These tests require customers to collect their DNA sample and mail it to the DTC-GT company for analy- sis. Upon analyzing the customer's DNA, the DTC-GT company sends the customer a report outlining his or her genetic risk of de- veloping a particular disease. The popular- ity of these companies has increased rapidly in the past few years. However, customers, researchers, and public health officials have expressed concerns about the privacy risks associated with ordering a DTC genetic test. La fin du vingtieme siecle a vu l'apparition d'entreprises qui vendent des tests gend- tiques offerts directement aux consomma- teurs (TG-ODC) dont le pr616vement se fait chez soi. Pour effectuer ces tests, les clients sont obliges de prelever un dchantil- lion d'ADN et de l'envoyer a l'entreprise TG-ODC pour analyse. Suite a ladite ana- lyse, l'entreprise TG-ODC fournit un rap- port qui resume les risques gendtiques du developpement de certaines maladies. La popularite de ces entreprises s'est rapide- ment accrue au cours des dernieres anndes. Cependant, les clients, les chercheurs et les responsables de la sante publique ont expri- * Victoria Di Felice, BSc, MSc, JD, is an associate at Deeth Williams Wall LLP practicing in the areas of intellectual property law and infor- mation technology law. * Victoria Di Felice, B. Sc., M. Sc., J.D., est une avocate chez Deeth Williams Wall LLP travaillant en droit de propridtd intellectuelle et de technologie informatique. © Victoria Di Felice, 2024 Citation: Victoria Di Felice, Canada's Genetic Non-discrimination Act: False Security for Customers of Direct-to-Consumer Genetic Testing Services (2024) 16:1 McGill JL & Health 1. Reference: Victoria Di Felice, « Canada's Genetic Non-discrimination Act: False Security for Customers of Direct-to-Consumer Genetic Testing Services » (2024) 16:1 RD & JL sante McGill 1.

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