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18 Am. J. Bioethics i (2018)

handle is hein.journals/ajbio18 and id is 1 raw text is: 



January 2018, Vol. 18 No. 1


The  American Journal of Bioethics


Editorial          Managing   Expectations:  Delivering the Worst  News  in the
                   Best Way?
                   Alyssa M. Burgart and David Magnus                                        1


Target Article     From  Longshot   to Fantasy: Obligations   to Pediatric
                   Patients and  Families When   Last-Ditch  Medical  Efforts Fail
                   Elliott Mark Weiss and Autumn Fiester                                     3


Open Peer          Honesty in Shared Decision Making When Last-Ditch Efforts Fail
Commentaries       Alexander A. Kon and Mary Devereaux                                      12

                   Communicating With Pediatric Families at End-of-Life Is Not a Fantasy
                   Connie M. Ulrich, Kim Mooney-Doyle, and Christine Grady                  14

                   What the F?
                   Donna Chen, Elizabeth Epstein, Susan Almarode, Jameel Winter, and
                   Mary Faith Marshall                                                      16
                   Longshot, Fantasy, and Pipedreams
                   John J. Paris and Brian M. Cummings                                      19

                   Hope, Fantasy, and Communication in the ICU: Translating Frameworks
                   into Clinical Practice
                   Christy L. Cummings                                                      21

                   Taking the Long View of the Longshot: Obligations to Patients and
                   Families Extend Beyond Rubrics
                   Jessica P. Miller and Jonathan Wood                                      24

                   The Road to Clinical Fantasy: A UK Perspective
                   Angela Fenwick, Peta Coulson-Smith, and Anneke Lucassen                  26

                   The Challenges of Discussing Longshot and Fantasy Treatments
                   Aaron Rothstein and Ariane Lewis                                         27

                   Making Sense of the Surreal: Guiding Families and Patients When
                   Last-Ditch Medical Efforts Fail
                   Matthew J. Drago                                                         30

                   Patient Autonomy Is a Right, But Exercising That Right May Not Be an
                   Obligation for Patients and Kin
                   Thor Willy Ruud Hansen                                                   32

                   A Model for Communication About Longshot Treatments in the Context
                   of Early Access to Unapproved, Investigational Drugs
                   Eline M. Bunnik and Nikkie Aarts                                         34

                   Reframing Fantasy: Toward a Common Language of Hope, Dying, and
                   Death in Long-Shot Pediatrics
                   Courtney Addison and Courtney Hempton                                    36

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