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45 Jurimetrics 205 (2004-2005)
Genebank Management: A Review of Salient Ethical, Legal, and Social Issues

handle is hein.journals/juraba45 and id is 215 raw text is: GENEBANK MANAGEMENT: A REVIEW OF SALIENT ETHICAL, LEGAL, AND SOCIAL ISSUES Michael D. Volk Jr., Christine Meis McAuliffe, and May Mowzoon* ABSTRACT: Genebanks are a revolutionary tool used to study and facilitate the development of therapies for human disease. However, human genebanks also raise several practical, ethical, legal, and social issues. This Article reviews these salient issues that invoke considerations of intellectual property, privacy, informed consent, community consent, and risk-benefit inequities that genebanks should consider when engaging in human genetic sampling and human subjects research. CITATION: Michael D. Volk Jr., Christine Meis McAuliffe, and May Mowzoon, Genebank Management: A Review of Salient Ethical, Legal, and Social Issues, 45 Jurimetrics J. 205-223 (2005). Genebanks and genomic databases' have become a revolutionary tool for a better understanding ofhuman disease, behavior, and origin by providing a means to correlate vast amounts of genomic data with medical records and genealogy. Genebank data coupled with DNA analysis can help determine the cause of complex, multi-gene disorders, such as predisposition to cancer, heart disease, and psychiatric illnesses, resulting from the interaction of several malfunctioning *Michael D. Volk Jr. is a J.D. candidate at the Arizona State University College of Law; Christine Meis McAuliffe is a registered patent attorney in the Biotechnology and Life Sciences Practice Group at Jennings, Strouss & Salmon, PLC, Phoenix, Arizona; and May Mowzoon is a law clerk at the Arizona State Court of Appeals, Division One. She will be joining the intellectual property practice group of Lewis and Roca, LLP in the Fall of 2005.The authors would like to thank Gary Marchant, Andrew Askland, and the Arizona State University College of Law Center for the Study of Law, Science, and Technology. 1. Hereinafter collectively called genebanks. WINTER 2005

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